Introduction

Jake Vella, a 14-year-old residing in Birzebbuga, Malta, is currently enrolled in Year 10 at St. Michael School, where his favourite subjects include Maths, Accounts, Economics, and ICT.

At the tender age of 5, Jake began facing a unique challenge—he rapidly gained weight despite attempts at incorporating sports and healthier eating into his routine. Concerned, Jake's parents consulted with doctors, leading to a series of tests and a life-altering diagnosis. Jake was found to have Rohhad Net Syndrome (ROHHAD), a rare disorder affecting respiratory control, autonomic nervous system regulation, and involving endocrine system abnormalities.

In 2015, following the diagnosis, Jake embraced the world of triathlon, initially practicing swimming, cycling, and running. However, due to leg discomfort, he transitioned to cycling and swimming, dedicating three years to triathlon and an additional two years to cycling and swimming.

Jake's resilience extends beyond personal achievements. He has undertaken numerous charity initiatives, notably organizing swims to raise funds for the Association for Abandoned Animals. One of his most notable accomplishments was a 100km swim in a 25m pool over 20 days, coinciding with his mother's 20-day radiotherapy sessions, completing it in an impressive time of 33hrs.15mins.39secs.

Over the past two years, Jake orchestrated a paw walk around Mater Dei for the Association for Abandoned Animals, and together with Dr. Lydia, he initiated a Christmas Tree at the Main Entrance of Mater Dei, collecting pet food for animal sanctuaries.

In closing, Jake leaves us with a powerful motivational message: "Always believe in yourself, never give up, and never let your disability hinder your goals." His story serves as an inspiration to us all.